Tuesday, January 15, 2013
Frontal lobe dementia
FTD not the fun flower delivery truck... This is a dementia that robs one of the frontal lobe of the brain activity.
Last night while watching a PBS show I watched a confused but eloquent woman explain what she was going through, on film to help others. Her daughter was sharing her own difficulties dealing with her mother. Wow... I am so not ready for this. But, looks like may be true.. explains a lot.. I wish to list this in order to keep order as long as I can.
to start I hit all markers off web page http://ftdtheotherdementia.com/ early symptoms.
Very, Very Early Signs and Symptoms - Preclinical Symptoms: These are the results of a survey of the FTDSUPPORTFORUM.com.
~ Something is changing in thinking.
~ Stopping mid-sentence -forgetting the end!!
~ Difficulty finding words
~ Math not in head- mathematical problem
~ Slows functions and hard to focus for very long periods
~ Get lost driving in familiar places
these were symptoms at age 48. I have not driven in nearly 10 years now.. Following a random car 30 miles away from my own home, on my way from work was a good indicator I was having difficulties.
My mathematical duties for Reinforcing steel calculations, using formulas once in memory but then listed in a quiet place to cheat eventually became noticed and failure for assignments became coordinator of drawings. Fortunately I was not fired and Dr. decided for me time to stop pretending.
stopping mid-sentance and forgetting end.. everyone does that.. it is the word that just does not come out or the word repeated much like a stutter but not a stutter.. just a repeat repeat of a word
focus for long periods.. I can do .. not really a recalled issue. as of one I did not notice.
symptoms now 10 years later:
slow movement, tires easily, needing cane or scooter. using parkinson's meds for "parkinson'isms" diagnosed with a Dystnoia. Dopamine Responsive Dystonia.
Church.. talking about teaching Children first Jesus was born , getting to the fact he was a person before "they kill him on the cross" was very inappropriate. I do bluntly talk without caring if the words hurts those around me. I ask myself why later.. but never stopping as this happens.
i talk, and talk and talk.. but when needing to really describe something.. The words halt, garble, skipped words come out where a sentence structure is not there. The people... quilt guild or family members just stare back.. My husband is quite angry at some of the odd conversations. Impatience is a problem. Daughter multitasking can not wait for me to express what I need to say. Husband just done listening, or loud to get the point once again I have not told him right. Diabetes makes him short. so.. we are not a good team anymore.
I called several places trying to find an clinic for trial.. none so far. I did call my neuro guy.. but "what is next" may be the answer.. my negativism is from fear.. fear to ask for meds when they are needed, fear asking him for more tests will test his professionalism.
so.. I wait this out and can not fix this one..
My shoes are not on my feet. I can tie them.. but oh my... no longer run to catch up with the world.
new computer. no way program for spell check.
Ell
Last night while watching a PBS show I watched a confused but eloquent woman explain what she was going through, on film to help others. Her daughter was sharing her own difficulties dealing with her mother. Wow... I am so not ready for this. But, looks like may be true.. explains a lot.. I wish to list this in order to keep order as long as I can.
to start I hit all markers off web page http://ftdtheotherdementia.com/ early symptoms.
Very, Very Early Signs and Symptoms - Preclinical Symptoms: These are the results of a survey of the FTDSUPPORTFORUM.com.
~ Something is changing in thinking.
~ Stopping mid-sentence -forgetting the end!!
~ Difficulty finding words
~ Math not in head- mathematical problem
~ Slows functions and hard to focus for very long periods
~ Get lost driving in familiar places
these were symptoms at age 48. I have not driven in nearly 10 years now.. Following a random car 30 miles away from my own home, on my way from work was a good indicator I was having difficulties.
My mathematical duties for Reinforcing steel calculations, using formulas once in memory but then listed in a quiet place to cheat eventually became noticed and failure for assignments became coordinator of drawings. Fortunately I was not fired and Dr. decided for me time to stop pretending.
stopping mid-sentance and forgetting end.. everyone does that.. it is the word that just does not come out or the word repeated much like a stutter but not a stutter.. just a repeat repeat of a word
focus for long periods.. I can do .. not really a recalled issue. as of one I did not notice.
symptoms now 10 years later:
slow movement, tires easily, needing cane or scooter. using parkinson's meds for "parkinson'isms" diagnosed with a Dystnoia. Dopamine Responsive Dystonia.
Church.. talking about teaching Children first Jesus was born , getting to the fact he was a person before "they kill him on the cross" was very inappropriate. I do bluntly talk without caring if the words hurts those around me. I ask myself why later.. but never stopping as this happens.
i talk, and talk and talk.. but when needing to really describe something.. The words halt, garble, skipped words come out where a sentence structure is not there. The people... quilt guild or family members just stare back.. My husband is quite angry at some of the odd conversations. Impatience is a problem. Daughter multitasking can not wait for me to express what I need to say. Husband just done listening, or loud to get the point once again I have not told him right. Diabetes makes him short. so.. we are not a good team anymore.
I called several places trying to find an clinic for trial.. none so far. I did call my neuro guy.. but "what is next" may be the answer.. my negativism is from fear.. fear to ask for meds when they are needed, fear asking him for more tests will test his professionalism.
so.. I wait this out and can not fix this one..
My shoes are not on my feet. I can tie them.. but oh my... no longer run to catch up with the world.
new computer. no way program for spell check.
Ell
PBS show
FTD
Not the fun florist delivery guy but a brain malfunction.
I watched a PBS story of a poor woman, knowing her brain was not functioning but able to share her abilities and disablilities to an extent to help those watching. My eyes could not stop watching her.. I know.. This will be me.
So, at this time I need to record what I am experiencing.. while I can.
to start off I hit every mark on "early early signs"
Not the fun florist delivery guy but a brain malfunction.
I watched a PBS story of a poor woman, knowing her brain was not functioning but able to share her abilities and disablilities to an extent to help those watching. My eyes could not stop watching her.. I know.. This will be me.
So, at this time I need to record what I am experiencing.. while I can.
to start off I hit every mark on "early early signs"
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